Rapid advances in clinical treatment and greater medical attention to people with Down syndrome during the 20th century have increased the life expectancy of these individuals. As many adults with this genetic condition live into their 50s, 60s and beyond, this new longevity needs to be incorporated into lifetime planning when a child is born. The law assumes that people over the age of 18 are competent to manage their own affairs regardless of disabilities, and parents are no longer considered legal guardians after this point. If protective provisions are not in place, the courts will make important decisions. Physical, social, financial and legal issues must be considered, as well as siblings and service agencies. A well thought out life plan is essential for long-term quality life for your loved one with Down syndrome. The consequences of not planning are too great to ignore. It is important to begin Life Planning early in your child’s life.
Future Planning Handbook
Thinking About Tomorrow
Planning for the Future
Special Needs Solutions Planning